About this profile
Huntington’s Disease is a rare genetic condition that affects the brain. It causes progressive damage to nerve cells, leading to movement problems, changes in behaviour and thinking, and eventually, loss of independence. Symptoms usually begin between ages 30 and 50.
Watch and listen
Common challenges
- Involuntary movements (e.g. jerking or twitching)
- Trouble with balance, walking, and coordination
- Difficulty with focus, memory, or decision-making
- Changes in mood or behaviour (e.g. irritability, depression)
- Fatigue and slower response times
- The progressive nature of the disease may lead to reduced work hours or early retirement
How to help
- Support with planning for the progression of the disease
- Help identify suitable roles with predictable tasks and low physical demands
- Encourage open communication with employers about changes in capacity
- Connect the participant with disability employment services and financial planning support
- Teach memory and time management strategies
Notes
Huntington’s Disease changes over time. Planning ahead and making small, early adjustments can help people continue working for as long as possible. Practitioners can play a key role in balancing health, work, and wellbeing.
May is Huntingtons Awareness Month