About this profile
ME/CFS is a complex, long-term condition that causes extreme fatigue that doesn’t improve with rest. It often worsens with physical or mental activity. Other symptoms may include sleep disturbances, pain, difficulty thinking clearly (“brain fog”), and dizziness. The severity and pattern of symptoms can vary greatly.
Watch and listen
Common challenges
- Persistent fatigue that limits work hours or consistency
- Difficulty concentrating or processing information
- Sensitivity to light, noise, or sensory overload
- Post-exertional malaise (worsening of symptoms after activity)
- Trouble commuting or maintaining a regular schedule
- Need for frequent rest breaks or naps during the day
- Unpredictable flare-ups make attendance unreliable
How to help
- Assist in identifying low-stress, flexible roles
- Help break tasks into manageable steps with rest periods
- Support energy management techniques (pacing and planning)
- Advocate for flexible work conditions and assistive supports
- Provide education to employers about the nature of ME/CFS
- Guide decisions around disclosure and job suitability
Notes
ME/CFS can be unpredictable and disabling, even though outward signs may not be visible. Supporting someone with this condition requires flexibility, empathy, and regular check-ins to adjust supports as needs change.
May 12th is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Day