Neurological disorders and injuries

Huntington’s Disease

A rare genetic condition affecting the brain, causing progressive changes in movement, thinking, and behaviour.
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About

Huntington’s Disease is a rare genetic condition that affects the brain. It causes progressive damage to nerve cells, leading to movement problems, changes in behaviour and thinking, and eventually, loss of independence. Symptoms usually begin between ages 30 and 50.

This condition is often invisible.

Many disabilities, including this one, may not have outward signs—people can be significantly impacted even if they appear “fine” on the outside.

Common Challenges

  • Involuntary movements (e.g. jerking or twitching)
  • Trouble with balance, walking, and coordination
  • Difficulty with focus, memory, or decision-making
  • Changes in mood or behaviour (e.g. irritability, depression)
  • Fatigue and slower response times
  • The progressive nature of the disease may lead to reduced work hours or early retirement

Practitioner Help

  • Support with planning for the progression of the disease
  • Help identify suitable roles with predictable tasks and low physical demands
  • Encourage open communication with employers about changes in capacity
  • Connect the participant with disability employment services and financial planning support
  • Teach memory and time management strategies

Common Accommodations

  • Support for transitions if the participant needs to change duties or reduce hours
  • Flexible work hours or part-time schedules
  • Clear instructions and step-by-step guidance
  • Use of reminders, alarms, or apps for organisation
  • Access to assistive devices (mobility aids, assistive technology)
  • A quiet or low-sensory workspace
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Notes

Huntington’s Disease changes over time. Planning ahead and making small, early adjustments can help people continue working for as long as possible. Practitioners can play a key role in balancing health, work, and wellbeing.

May is Huntingtons Awareness Month

Resources

  • Huntington’s disease - symptoms, treatments and causes | healthdirect
  • Huntington’s NSW & ACT
  • Huntington's disease | Better Health Channel
Neurological disorders and injuries

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