Rett Syndrome
A rare genetic neurological condition, primarily affecting girls, impacting movement, communication, and cognition.
About
Rett Syndrome is a rare genetic neurological disorder that predominantly affects girls. It leads to severe impairments in motor function, communication, and cognition after a period of normal early development. Common features include loss of purposeful hand use, slowed growth, and seizures.
This condition is often invisible.
Many disabilities, including this one, may not have outward signs—people can be significantly impacted even if they appear “fine” on the outside.
Common Challenges
Practitioner Help
Common Accommodations
Notes
Rett Syndrome is progressive and requires ongoing adjustments as needs change. A highly supportive and predictable environment with appropriate therapies maximises participation and quality of life.
October is Rett Syndrome Awareness Month
Resources
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