Chronic Pain

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

A complex, long-term illness causing extreme fatigue, pain, and cognitive difficulties that worsen with activity.
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      • Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

About

ME/CFS is a complex, long-term condition that causes extreme fatigue that doesn’t improve with rest. It often worsens with physical or mental activity. Other symptoms may include sleep disturbances, pain, difficulty thinking clearly (“brain fog”), and dizziness. The severity and pattern of symptoms can vary greatly.

This condition is often invisible.

Many disabilities, including this one, may not have outward signs—people can be significantly impacted even if they appear “fine” on the outside.

Common Challenges

  • Persistent fatigue that limits work hours or consistency
  • Difficulty concentrating or processing information
  • Sensitivity to light, noise, or sensory overload
  • Post-exertional malaise (worsening of symptoms after activity)
  • Trouble commuting or maintaining a regular schedule
  • Need for frequent rest breaks or naps during the day
  • Unpredictable flare-ups make attendance unreliable

Practitioner Help

  • Assist in identifying low-stress, flexible roles
  • Help break tasks into manageable steps with rest periods
  • Support energy management techniques (pacing and planning)
  • Advocate for flexible work conditions and assistive supports
  • Provide education to employers about the nature of ME/CFS
  • Guide decisions around disclosure and job suitability

Common Accommodations

  • Minimising physically or mentally demanding tasks
  • Staggered start times or split shifts to manage energy
  • Flexible working hours or part-time work
  • Allowing breaks to rest or recalibrate balance
  • A quiet or low-sensory workspace
  • Adjustable lighting (for pain-triggering conditions)
  • Modifying the workspace to reduce background noise
  • Clear, written instructions for tasks
  • Written instructions alongside verbal communication
View more on enableDex

Notes

ME/CFS can be unpredictable and disabling, even though outward signs may not be visible. Supporting someone with this condition requires flexibility, empathy, and regular check-ins to adjust supports as needs change.

May 12th is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Day

Resources

  • ME/CFS | Emerge Australia
  • What is ME/CFS? – Emerge Australia
  • Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) - symptoms and treatment | healthdirect
  • Chronic Fatigue Syndrome | Mayo Clinic
Chronic Pain

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