Genetic and hereditary syndromes

Muscular Dystrophy

A group of genetic disorders causing progressive muscle weakness, impacting movement and daily tasks.
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About

Muscular Dystrophy (MD) is a group of genetic disorders that cause muscles to weaken over time. This leads to difficulty in moving, walking, breathing, and performing daily tasks.

This condition is often invisible.

Many disabilities, including this one, may not have outward signs—people can be significantly impacted even if they appear “fine” on the outside.

Common Challenges

  • Difficulty with walking or standing for long periods.
  • Muscle weakness or loss of strength.
  • Fatigue or tiredness.
  • Need for mobility aids (wheelchair, walker).
  • Limited dexterity or fine motor control.
  • Frequent medical appointments or health management.
  • Difficulty lifting objects or performing physical tasks.

Practitioner Help

  • Assess skills, strengths, and job preferences.
  • Suggest suitable job roles that match abilities.
  • Provide career counselling and guidance.
  • Assist with job search and application process.
  • Support the participant in negotiating accommodations with employers.
  • Offer advice on time management and handling work challenges.
  • Encourage open communication with employers about needs.

Common Accommodations

  • Adjustable workstations to reduce strain
  • Special computer equipment (voice recognition software, adaptive keyboards)
  • Job restructuring or redistributing tasks
  • Flexible working hours or part-time work
  • Access to assistive devices (mobility aids, assistive technology)
  • Time off for medical appointments or treatment
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Notes

Muscular Dystrophy varies in severity, and its impact on work ability depends on the specific type and progression of the disease. With the right support and accommodations, individuals with MD can lead fulfilling careers.

Awareness days are set for two kinds of MD: Duchenne and limb-girdle.

Sept. 7 is World Duchenne Awareness Day,

Sept. 30 is Limb-Girdle Muscular Dystrophy Awareness Day.

Resources

  • Muscular dystrophy | healthdirect
  • Living with Muscular Dystrophy
  • WHAT IS MD? - Muscular Dystrophy Foundation Australia
Genetic and hereditary syndromes

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