Haemophilia and Bleeding Disorders

Conditions where blood doesn't clot properly, leading to excessive bleeding and bruising.
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About

Haemophilia and other bleeding disorders are conditions where the blood doesn’t clot properly. This can lead to excessive bleeding, either spontaneously or after an injury. People may bruise easily, experience joint pain, or have internal bleeding, which can be dangerous if not managed carefully.

This condition is often invisible.

Many disabilities, including this one, may not have outward signs—people can be significantly impacted even if they appear “fine” on the outside.

Common Challenges

  • Risk of injury or prolonged bleeding from minor accidents
  • Chronic joint pain or mobility limitations from repeated bleeding
  • Needing time off for medical treatment or recovery
  • Avoiding physically risky tasks or high-impact environments
  • Fatigue or discomfort due to pain or blood loss

Practitioner Help

  • Help identify roles with low physical risk and safe environments
  • Support the participant to communicate medical needs with employers
  • Assist in planning for time off for treatments and recovery
  • Recommend physical supports to reduce strain or risk of bleeding
  • Encourage development of self-advocacy and safety awareness skills

Common Accommodations

  • Minimising tasks with risk of cuts, falls, or physical trauma
  • Providing a first aid-trained colleague or access to emergency protocols
  • Adjustable workstations to reduce strain
  • Modified work schedules or reduced workload
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Notes

With good medical support and workplace adjustments, many people with bleeding disorders can work safely in a wide range of jobs. It’s important to reduce physical risk and allow flexibility for health management.

Every year on 17 April World Haemophilia Day is recognised globally to raise awareness of haemophilia, von Willebrand disease and other bleeding disorders.

Resources

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