Fragile X Syndrome

A genetic condition impacting brain development, leading to intellectual and behavioural challenges.
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    • Fragile X Syndrome

About

Fragile X Syndrome is a genetic condition that causes intellectual disability, learning difficulties, and behavioural challenges. It affects brain development and is more common in males. People with Fragile X may also experience anxiety, social difficulties, and features of autism.

This condition is often invisible.

Many disabilities, including this one, may not have outward signs—people can be significantly impacted even if they appear “fine” on the outside.

Common Challenges

  • Difficulty understanding complex instructions
  • Sensory sensitivities to noise, lights, or textures
  • Anxiety in unfamiliar or busy environments
  • Repetitive behaviours or need for routine
  • Trouble with social interactions or communication
  • Limited problem-solving or decision-making skills

Practitioner Help

  • Support with job matching based on strengths and interests
  • Teach job tasks using repetition and structure
  • Provide social communication coaching
  • Help develop routines and predictability
  • Encourage the use of visual supports and reminders

Common Accommodations

  • Structured tasks with minimal changes
  • Positive reinforcement and structured feedback
  • Clear instructions and step-by-step guidance
  • Adjustments to the work environment to reduce sensory overload
  • Extra time for reading or writing tasks
  • Job coaching or ongoing support
View more on enableDex

Notes

Work environments that offer patience, structure, and clear expectations are especially helpful for individuals with Fragile X. With the right support, many can work successfully in roles that suit their strengths and interests.

July 22nd is World Fragile X Day

Resources

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