Genetic and hereditary syndromes

Cystic Fibrosis

A genetic condition causing thick mucus to build up, affecting breathing, digestion, and daily life.
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About

Cystic Fibrosis (CF) is a genetic condition that affects the lungs and digestive system. It causes thick and sticky mucus to build up in the lungs, leading to breathing problems, lung infections, and digestive issues.

CF can impact daily life and require ongoing medical care.

This condition is often invisible.

Many disabilities, including this one, may not have outward signs—people can be significantly impacted even if they appear “fine” on the outside.

Common Challenges

  • Difficulty with physical tasks due to breathing issues.
  • Frequent absences for medical treatments and hospital visits.
  • Fatigue or low energy levels.
  • Possible difficulty with maintaining consistent focus or productivity.
  • Limited access to jobs that accommodate health needs.
  • Social stigma or misunderstanding about the condition.

Practitioner Help

  • Help identify suitable job roles based on physical ability and health status.
  • Advise on managing time for medical treatments and work responsibilities.
  • Guide the participant in communicating with potential employers about their needs.
  • Assist in applying for workplace accommodations.
  • Provide support and encouragement in building resilience and confidence in the workplace.

Common Accommodations

  • Providing a less physically demanding job role
  • Flexible work hours (for managing health conditions)
  • Allowing breaks to rest or recalibrate balance
  • Flexible working hours or part-time work
  • Ensuring a clean, healthy work environment to reduce infections
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Notes

CF is a lifelong condition, but with the right treatment and support, individuals can lead fulfilling careers.

Early intervention and ongoing health care are crucial for managing symptoms and preventing complications.

May is Cystic Fibrosis Awareness Month

Resources

  • Cystic fibrosis (CF) - symptoms, causes and diagnosis | healthdirect
  • What is CF? – Cystic Fibrosis Australia
  • Cystic Fibrosis Australia – Peak National Body
Genetic and hereditary syndromes

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